The most updated information on Riley

The Truth


Posted 6 hours ago

Riley is feeling great and she seems to be recovered from surgery. She practiced tennis this weekend and reported that it no longer hurts to take a deep breath. We are so thankful for her healing. It overjoys us to watch her run and play with the other kids. We have always enjoyed spring, but this year I am extremely more grateful as spring approaches because there was a time last year when I thought we would see this spring without Riley-for that is what science and medicine told us.



Today my heart believes we will have Riley with us for many more springs. I am so thankful for how God has guided me to this belief and given us a chance for more springs. How He crafted my faith to grow to this extent amazes me. It truly required the willingness of many to follow God’s perfect plan to bring us where we are today. My knowledge of medicine has been an entrance point for the devil, but through God and with the help of others, I was encouraged to resist the science and embrace the faith. We have stepped from just “hoping” out onto the branch of “believing” with confidence in Him. We can’t find the Truth in earthly means. Not in medicine, in numbers, in security, in wealth, in possessions, in titles, in fame, or in power - It lies only in God.



The answer in God isn’t found just once. Daily efforts to focus on the truth and to avoid being led away from Him are required. We feel we see His truth more clearly now than 5 years ago, or even last year. I hope each day I can continue to see Him more clearly. I know it all depends on me, since He does not change.



We must all study, learn, and practice choosing God as our truth. This is what Lent is about for us this year - Strengthening ourselves in God and preparing ourselves to resist the temptation of sin and the devil. This is not an easy task because the devil is very cunning and tries to plant seeds of sin and doubt. We were reminded of this with the readings at mass this Sunday with the story of Adam and Eve (Genesis 2:7-9;3:1-7) and how Satan even tried to tempt Jesus after His forty days of fasting in the desert (Matthew 4: 1-5). During this forty days of Lent we must try to prepare ourselves as Christians so that we may resist the devil and accept God as our only Truth.



Please help pray with us for a friend(Ashley)who just underwent a stem cell transplant and now has RSV. Please pray that God will protect her from complications with this illness and bring her back to complete health. Also please pray for Meghan and her family as they struggle with advancing and progressive Wilm's disease.



Thank you for your support in helping us stand confidently in Him.



Believing in the Truth, Kirk and Kelly

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Riley's Update

Keep Moving


Posted 2 minutes ago

Keep Moving. That is how Riley tackles the world. Better even might be "Keep Living."



She came home Friday night from the hospital. She has recovered like a champ. We left for NY Sunday and she just received her next infusion of Ella's WBC's. She will be returning to NY next week and every 1-2 weeks.



Not sure how long we can have the treatments, but we pray the FDA approves further treatments.



To explain what we hope this treatment does is like putting out pre-emergent weed killer on your lawn. We have been treating Riley so new tumors wouldn't grow but it won't theoretically kill what already had grown. She had surgery to remove the big tumors so now we expect the cells to have easier time of keeping new tumors away.



We are so thankful to God for his continued protection and awed at His plans. We look forward to spring, sunshine and spring sports. Riley has given up soccer this year, but has plans to start tennis lessons in March! She said she will be fine to play by then!



Thank God for Riley's Army beginning to move forward again. Thanks to the Board and Karen for keeping it going. We hope you will hear lots more about the good work in the months to come. Pray for Kimber as she takes on the task of helping us get back on track to help other families in need.



Praying, believing and expecting complete healing and continued growth with God as our Guide,

Kirk & Kelly